twirlgrrl: (hello kitty)
I'm sick! The plague that's been making its way around my household finally got to me. This is one of the nastier viruses and I was really hoping to skip it. What I hate about it, aside from the aches, shakes and chills, is that it starts out with a little cough, and then by day 2 (at least for me) it's all the way lodged in my chest, with a very deep nonproductive cough. For a person with asthma, this is the worst part. I've been using inhalers trying to make sure my lungs don't get too clogged up, but I just hate this feeling. I'm also trying not to cough much, and using expectorant + suppressant for that. I managed to work a full day yesterday in spite of this, but by evening I had to crawl into bed because I had awful chills and shaking. Woke up for more medicine at 4am and now I'm checking LJ because I didn't get to look at it at all yesterday and I am addicted to you guys.

My dear friends Brinn and Andrew own a restaurant here in SF called Q, and it'll be on the Food Network sometime soon! They don't know exactly when the film crew is going to show up, so they're on high alert. I'm so excited for them! They'll be on the show called Diners and something; I think it's the one with that guy with the backwards sunglasses. I saw it at George's house--George watched a lot of Food Network in spite of (or maybe because of) not being able to eat.

I sure miss George.

Anyway, I don't know when it will air, but if I find out I'll alert my FL. So exciting! I'm so proud of B & A.
twirlgrrl: (Default)
Road trips used to be my favorite thing. I dated someone in San Francisco when I lived in Los Angeles, and someone in Los Angeles when I lived north of San Francisco, so I've done a lot of driving up and down the state. I used to love the time spent in the car, blasting music and singing along, or just thinking. I suppose I still do. But right now is a weird time to have 6 hours to do nothing but think. A lot of my life is in limbo--I have a friend who's waiting to die, a relationship that's slowly recovering but can't be rushed, and another relationship that must stay relatively static by dint of geography. I wasn't even sure what to think about! I made a lot of phone calls, though, and that was great--I don't often have time to catch up with friends without someone screaming for my attention in the background. I also stopped by Barbie and Brian's to say hi, and ended up with a tin foil packet of freshly grilled tri-tip for dinner in the car. Mmmm!

I called George a little while ago and he is at the resort but he is feeling too awful to want company tonight. So I stopped by Kinko's to get a little computer fix before trucking on down to my hotel. Actually I've decided to see a movie downtown. I'm going to the Arlington, a theater I used to go to as a kid. It was magical then--a little Spanish village built along the walls on each side, and pinhole stars in the ceiling. I haven't been there in many years but it holds a lot of memories for me. They're showing The Dark Knight; not sure I'm into that but I really want the Arlington experience, and if it's moody and gloomy it might fit my mood tonight.

When I was maybe 5 years old on a family outing to the Arlington, perhaps to see Fantasia (my dad's favorite movie), I fell getting out of the car and split my chin wide open. My dad scooped me up and took me to the hospital where he worked. He draped my face and sewed me up himself. I remember the bright white of the hospital room and the fear of not being able to see much out of the eyeholes of the paper drape. I remember being reassured by my father's presence. It's one of the most vivid memories I have of him.

It's so weird to be in Santa Barbara alone tonight.
twirlgrrl: (Default)
After those three out-of-town trips with LJ meetups in between, the visit from Ellen and kids during which of course I got NOTHING done (not complaining!), and the big survey which happened Friday, now I've taken my one non-work day and I'm off to Santa Barbara to meet up with George and Larry. I barely have time to touch down in my office--write a few checks, make sure I'm not missing any payment deadlines, check email on three hospital systems, answer several urgent work-related emails, download transactions into Quicken, fold laundry, pack and I'm gone. If you are waiting for email, comments or a phone call from me please know that I'm not ignoring you intentionally.

OK, so I took the time to copy/paste something into LJ and upload a couple of pics too. :)
twirlgrrl: (Default)

What is a Toast To Life? It is a time where those of us living with major illness at 8pm local time, no matter where you are can raise a glass (whiskey, beer, orange juice, coffee, water - whatever) and drink a toast to life.

It would be a time that we can all share

A time to say that despite it all, we're still here.
A time to say that we still doing the dance of life
A time to remember those we lost
A time to rejoice for those who have won
A time to give the finger to death.

Its a time for all suffering from any chronic illness, directly or indirectly, and family and friends as well.

Please feel free to tell anyone you know who may be ineterested in this.

Note: this is not a fund raising event, but if you want, maybe put the price of what ever you're drinking and pass that to a local charity.

So be well all.


PS - it has been suggested that rather than 8pm local time, that the toast be raised at 8pm Dublin time, so I've attached a quick guide to various cities around the globe

Honolulu 09:00
Anchorage 11:00
San Francisco 12:00
Quebec 15:00
Washington DC 15:00
Rio de Janeiro 16:00
Zulu Time 19:00
Dublin 20:00
Brussels 21:00
Cairo 21:00
Belgrade 21:00
Johannesburg 21:00
Jerusalem 22:00
Moscow 23:00
Singapore 03:00 Friday
Canberra 05:00 Friday


Mar. 23rd, 2008 09:38 pm
twirlgrrl: (Default)
Man, I am super behind on everything I need to do before I leave. I am flying to LA tomorrow to be with George for his first chemotherapy session. No time to write anything of substance. I apologize in advance to anyone I may be inadvertently ignoring.
twirlgrrl: (Default)
This one is for [ profile] ninjalie who was at my wedding. From left to right, it's Evan, me, George, and Larry. They were so funny; many people at my wedding dressed up in everything from Renaissance costume to fairy wings, and George and Larry were like "We're the Armani Guys!" What else could they possibly have worn? Larry irons his JEANS! :D


Three more pics under here )


Jul. 25th, 2007 04:52 am
twirlgrrl: (Default)
Hey, so, my dear friend George had surgery last week to remove the recurrent cancer on his tongue. The preliminary word is that they got it all, and he might not even need chemo or more radiation. The initial news was so bleak that I'm having a hard time trusting this new potential reality, but I really really hope it's true. I've been worried sick about him for weeks. Sometimes working in the cancer field is a disadvantage--I have a tendency to expect the worst case scenario, since it's the horror stories that stick in your mind when you do the kind of work I do.

But, HOORAY! Maybe this is IT! Maybe the cancer is GONE FOR GOOD!

I sure hope so. He's freaking 37 years old. When he was first diagnosed, he had extensive surgery and a brutal course of radiation that he still has nasty side effects from. The cancer has been gone for 4 years. He had about a 25% chance of making it this far, and he's done it. And he is a bright light, a wonderful person, who has a lot to give this world before he is through. And I love him.
twirlgrrl: (Default)
I'm browsing home exchange sites while planning for an upcoming trip. One of the sites is Is it just me, or do you read that as Home Sex Change?

Anybody want to swap my place in SF for your New York or Philadelphia place for a few days in October? I've only just started posting on craigslist but I'm not getting any nibbles, and I'm starting to get nervous about spending a bunch of money on the trip. *sigh* Anyway.

I've been writing a lot on Blue's LJ ([ profile] neuraltube), but practically nothing here. I guess I have too much going on and too much clutter in my brain and in my heart to write anything of consequence here.

One thing that you IRL friends may or may not know is that George's cancer came back, and he had surgery yesterday to remove another portion of his tongue. He also started a livejournal to update friends & family--go add him as a friend! It's [ profile] gbauer98.
twirlgrrl: (Default)
Ah, yes, I mentioned traveling. I'm back at the San Jose hospital. We came down yesterday, the whole family. We stayed in a hotel last night. It was AWESOME. It had everything I could think of--except no pool, so that makes it not so awesome for those with older kids. BUT! It had a huge square jacuzzi tub with jets, a hairdryer, a ceiling fan, a kitchenette, free wireless internet in the rooms, breakfast buffet, dinner buffet... everything. And it was SO much cheaper than hotels with these things usually are. Sometimes I stay at Motel 6, and lately I've been doing the whole upgrade thing (like Best Western style) more because I sometimes need the fridge action with a kid in the mix, but I am cheap. So it was really exciting to me that this place was cheaper than a Best Western would be, even though it's a work expense.

Blue apparently loved it too. While I was at work yesterday, he crumbled several rice cakes into a fine snow all over the carpet. He spread his toys all over the room, disassembled the phone (we had to unplug it), ate a bunch of food, ran around a bunch, and fell asleep on Daddy's chest for 3 hours. When he woke up it was around 10:30pm and I was ready to stop working, so Daddy and Blue came to get me. We grabbed something to eat and went back to the hotel, thinking that I would nurse him back to sleep easily since it was late and all. Right? WRONG. He stayed awake, stubbornly blinking his eyes open when they started to roll back in his head, until THREE A.M. Every once in a while he'd get up and run around on the bed, laughing crazily and almost falling off while I grabbed at him. I didn't want to hold him still because I didn't want him to scream--he's so loud and it was so late. So I just waited and waited. It sucked knowing how tired I was going to be today. But actually, I feel pretty good, even though he woke me up at 8:30am. I guess getting only 5.5 hours of sleep is pretty normal for me, after all.

I only have 2.5 hours more to work and then we're rushing home to meet George and Larry, who are driving up from LA this instant. Yippee!


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